Neurotechnologies have potentially profound implications for society and human rights. While they are improving the diagnosis and treatment of certain conditions, these technologies also open up new modes of access to the intimate workings of our brains. They can potentially affect the individual user’s agency, privacy, cognitive liberty and way of interacting with the world and those around them. Researchers and research institutions have a responsibility to ensure that research participants are treated fairly, and that responsibility extends after a study ends. Research participants also have rights regarding the collection and use of their brain data. Some of our work focuses on developing guidelines for neurotechnology research, and considerations of how important human rights can be protected in light of these new technologies.
People: Sara Goering, Eran Klein, Michelle Pham, Ishan Dasgupta.
Grants:
NIH R01MH130457-02S1 “Administrative supplement on peer support” (with Michelle Pham at MSU); $105K (2023-2024)
NIH 1RF1MH117800-S3 “Bioethics Supplement on Post-Trial Obligations in Neurotechnology” Co-PIs Sara Goering and Eran Klein, $137K (2020-2022).
Publications:
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Dasgupta, Klein, Cabrera, Chiong, Feinsinger, Fins, Haeusermann, Hendriks, Lazaro-Munoz, Kubu, Mayberg, Ramos, Roskies, Sankary, Walton, Widge, and Goering (2024) “What Happens After a Neural Implant Study? Neuroethics Expert Workshop on Post-Trial Obligations” Neuroethics 17:22.
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Goering S, Brown AI, Klein E. (2024) “Brain Pioneers and Moral Entanglement: An Argument for Post‐trial Responsibilities in Neural‐Device Trials” Hastings Center Report 54(1):24-33.
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Ligthart, Ienca, Meynen, Molnar-Gabor, Andorno, Bublitz, Catley, Claydon, Douglas, Farahany, Fins, Goering, Haselager, Jotterand, Lavazza, McCay, Paz, Rainey, Ryberg and Kellmeyer (2023) “Minding Rights: Mapping Ethical and Legal Foundations of ‘Neurorights’” Cambridge Quarterly of Healthcare Ethics 32(4): 461–481.
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Goering, Klein, Specker Sullivan, Wexler, Agüera y Arcas, Bi, Carmena, Fins, Friesen, Gallant, Huggins, Kellmeyer, Marblestone, Mitchell, Parents, Pham, Rubel, Sadato, Teicher, Wasserman, Whittaker, Wolpaw and Yuste (2021) “Recommendations for responsible development and application of neurotechnologies” Neuroethics 14(3):365-86.
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Hendriks, Grady, Ramos, Chiong, Fins, Ford, Goering, Greely, Huchison, Kelly, Kim, Klein, Lisanby, Mayberg, Maslen, Miller, Rommelfanger, Sheth and Wexler (2019) “Ethical challenges of risk, informed consent, and posttrial responsibilities in human research with neural devices: a review” JAMA Neurology 76(12):1506-14. PMID:31621797.
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Pham M, Goering S, Sample M, Huggins JE, Klein E. "Asilomar survey: researcher perspectives on ethical principles and guidelines for BCI research." Brain-Computer Interfaces. 2018;5(4):97–111.
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Yuste, Goering, Agüera y Arcas, Bi, Carmena, Carter, Fins, Friesen, Gallant, Huggins, Illes, Kellmeyer, Klein, Marblestone, Mitchell, Parents, Pham, Rubel, Sadato, Specker Sullivan, Teicher, Wasserman, Wexler, Whittaker and Wolpaw (2017) “Four ethical priorities for neurotechnologies and AI” Nature 551(7679):159–63. PMID: 29120438.
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Goering and Yuste (2016) “On the Necessity of Ethical Guidelines for Novel Neurotechnologies” Cell 167: 882-885.