Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice


Goering, Sara, Holland, Suzanne, and Fryer-Edwards, Kelly. “Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice.” Hastings Center Report 38.2 (2008): 43-53.

Relationships between researchers and marginalized populations have never been easy. To take moral account of how their research affects these communities, genetics researchers need a richer conception of justice, and they need to make those communities equal participants in decision-making about how the research is conducted and what is produced and published out of it. The challenge is to avoid unwittingly replicating or exacerbating existing health disparities.

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Status of Research or Work: 
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